SALT LAKE CITY – They say family is everything.
This one has 1,700 miles between them, with digital contact substituting for the real thing.
“Not being able to see them for basically three years is just super hard,” said V. Thipsouvan, Zariah Donovan’s mom, who lives in Sandy. “There’s part of me that’s so terrified that she’s going to forget me.”
Zariah was born prematurely. “Twenty-three weeks and six days,” Thipsouvan said.
Given a slim chance of survival, Zariah had open-heart surgery at 3 weeks old. After 10 months on a ventilator, her doctors said her chances dropped to zero.
“Lung tissue growth, the great portion of it happens in the third trimester and she never made it to there,” Thipsouvan said.
A Hail Mary pass to a specialty unit in Ohio followed, where Zariah spent time with doctors for the past 2 1/2 years.
“I think our staff are the ones who really spend the most time with them and really become like aunts and uncles and cousins and parents,” said Dr. Edward Shepherd, section chief of neonatology at Nationwide Children’s Hospital in Columbus, Ohio.
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Zariah’s father, Shawn Donovan, quit his career to be with her 24/7. He was the only one who could keep her from fighting the ventilator. Feeling safe in daddy’s arms, her condition improved.
“Just the distance, you know,” said Thipsouvan, who stays home in Utah with daughter Raven, and works to maintain the family’s health insurance.
Zariah Donovan was born at 23 weeks and 6 days. She was given a slim chance of survival and had open-heart surgery at just 3 weeks old. After 10 weeks on a ventilator, her doctors said her chances of survival dropped to zero. But they were wrong. (Photo: Family photo)
Despite the distance, Zariah saved many firsts for her mom’s visits.
“She started taking steps forward. Then the therapist was even more excited because she was like, ‘This is the first time that she’s ever taken steps forward,’ and I was like, ‘Yes!’”
On a Skype call last spring, Donovan said, “June 7th will by our thousandth day in the NICU.”
As Zariah progressed, her parents hoped to have her home for her 3rd birthday.
“She’s walking. She’s not doing the hopping anymore.” Thipsouvan said. “I just want everyone under one roof.”
V. Thipsouvan and her daughter, Raven, Skype Zariah and her father Shawn Donovan in Ohio. The family has had to live apart for three years and seven months because of major complications from Zariah’s premature birth. (Photo: KSL TV)
They make the most of things, dressing up the girls for Halloween — an attempt at normalcy in a life that isn’t.
“I just want all of us to hold each other,” Thipsouvan said.
They felt new hope in the fall when Zariah switched to a home ventilator, the biggest hurdle left.
“Excited and nervous and exhausted and everything all at once,” Thipsouvan said. “We’ve got to cross our fingers that we’re going to continue on the upward swing.”
Then word came that Zariah might be home for Christmas.
“’I’ll be home for Christmas.’ That very song popped into my head,” Thipsouvan said. “It’s been a long haul, but the holidays came and went.”